QuadPara Association of KZN

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The QuadPara Association of KZN – Project Summary

 

Capacity Building Programme

Module Summary
To develop a range of skills in a FOUR-WEEK full-time, live-in course, covering the following basic disciplines: -

  • •    Personal management and care (physical and emotional).
  • •    Communication and self-confidence, including telephone skills.
  • •    Basic administration and money management.
  • •    Small business start-up and management..
  • •    Home administration and management.
  • •    Transport management and costs.
  • •    Planning, setting goals, and implementing objectives.
  • •    Advocacy and human rights (Know your Rights).
  • •    Environmental accessibility.
  • •    Peer counselling and rural support group dynamics.
  • •    Relationships – family, partners, and friends.
  • •    Basic PC Training.

Capacity Building & Life Skills Development Program

  • •    To prepare participants and to build confidence and motivation through peer interaction.
  • •    To hold group sessions to maximise social and interactive skills, while building capacity through peer support to take in and embrace the modules shown above.
  • •    To identify possible entrepreneurial skills, and develop them.
  • •    To identify arts and craft potential, and develop them.
  • •    To encourage a fitness mindset through sport and gym activities.
  • •    To ensure good preventative skills are developed to manage pressure and general health issues.
  • •    Establishing mentorship & support group programs going forward.
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Mbali in CB Classes with Sipho Mbali addressing School learners
a few weeks after CB Training

  

Ashley Village Self-Help Centre

Ashley Village remains a major success for the Association. In the eighteen years since opening its doors, it has grown into a home and a personal development ground for the thirty- seven quadriplegics and paraplegics it has served over the years. Of these, sixteen have moved on to live within the community, seven are deceased, and fourteen are presently accommodated.

Two rooms are reserved for the rural capacity building project, and a respite / step down / bridging room is also available to take in quadriplegics and paraplegics for periods up to four weeks. This has so far proved very popular with both SCI’s and hospitals in the area.

Rural Capacity Building

The aim of the proposed Capacity Building Program is to develop basic life and personal management skills for persons living with significant mobility impairments within our KZN rural communities, through face-to-face and side-by-side peer interaction, mini workshop training, and positive motivation. This knowledge will then be used to establish support groups throughout KZN.

Caregiver Training

This has proved to be a highly successful project, with almost 80% of graduates moving on to be successfully employed. Thanks must go to Ausaid and the National Lotteries for the past and present financial support of this project.

Transport

We now have three vehicles that are extensively used to transport quadriplegics and other mobility impaired persons to and from work, training modules, and some excursions. Although a minimal transport fee is charged, the Association heavily subsidises the total cost of drivers, fuel, maintenance, insurance, and vehicle tracking. The demand for accessible transport continues to increase, (even after the launch of Dial-a-Ride) and a far more comprehensive transport service is well overdue in the Ethekwini Metro area.

Road Safety

Quadriplegics in KZN continue to participate in this worthwhile awareness campaign, and although a National initiative, KZN has taken some responsibility for the region where necessary. You will see our quadriplegic members, encouraging motorists to sign a pledge to drive safely, at strategic stops on the mainline at the beginning and end of school holidays.

Visitation, counselling, and equipment hire

We are often called on by hospitals to visit newly injured spinal cord patients and their families for specialised advice, counselling, and general assistance. Life Health Spinal Unit, Hillcrest Hospital, and Phoeniz Rehab Unit are where we have had the opportunity to interact with patients, and have established a good ongoing relationship with the staff.

Our specialised equipment stocks are slowly increasing, which allows us to assist those who need special devices or treatment, but don’t have the finances to pay for them.

Rural & Peri-Urban Mapping and Support Group Development

It is important to plan service delivery to areas that have the most needy persons with mobility impairments. We can only effectively do this after we have mapped and captured the details of as many disabled persons as possible in KZN. A Provincial Development Coordinator (PDC) is employed to drive this project, and maximise the benefit to those who really need it.

The PDC has, and will continue to establish support groups throughout the province with the assistance from those who go through our capacity building programme. The support group system will also offer ideal “catchments” for SCI’s who are discharged from hospitals. At present, a large portion of those discharged into rural communities do not survive longer than a year or two – we aim to change this.

............../Disabled Driver Training

Disabled Driver Training

We have a vehicle fitted with hand controls and duel braking for low-cost driver training to mobility-impaired persons who require the use of hand controls.

“Back to Work” Project

The Association has entered into a number of Partnership to place persons with disabilities back into mainstream employment. The Association reaps a double benefit – seeing a real increase in the equity ratio for disabled, and a monetary spin-off for each placement initiated through the Association.

Three quadriplegics and four paraplegics were placed in permanent employment, and a further three quadriplegics and one paraplegic have been employed in our communication and booking centre since 2010.

Mobile Rehab

An area of special concern within KZN is the limited amount of patient and family rehabilitation following the acute stages of treatment. This results in the quadriplegic that is discharged becoming permanently dependent on the State hospital system for recurring urinary tract complications and pressure sores.  Simple visitation, counselling, and education programmes can minimise the problems and resultant costs in these areas, as well as improve the lifestyles of the spinally injured in KZN.

We believe that a rehabilitation and education program can be enhanced with the participation of spinally injured persons who have accumulated many years of experience in a positive atmosphere. Also, by constant association and integration we can all benefit from each and every person’s expertise and strengths – it is accepted that the disabled learn far more from each other than from formal hospital programmes.

Our aim is to establish a meaningful educational and counselling outreach program for spinally injured persons and their families, with a view to an increased level of rehabilitation and positive social interaction in peri-Urban and Rural areas.

HIV-AIDS, Reproductive Health, & Disability

We are extremely concerned about a number of misconceptions that exist in a modern South Africa today.

Comments and (informal) policies that marginalise persons with disabilities in the HIV-AIDS testing program have become seriously discriminatory. One lady in a wheelchair who went for HIV testing was told that she would not be tested because “nobody would have sex with her anyway!” Others feel that disabled persons are expendable, and testing and treating them is wasting resources.

The QuadPara Association of KZN has embarked on a campaign to train counsellors, inform family and caregivers of persons with disabilities in an effort to develop opportunities for equality and best practices for persons with disabilities within the National HIV-AIDS strategic program. 

Regional management, accounting, & administration

The region oversees and manages all the projects of the Association, the finances, pays all mortgage loans and insurance costs, and handles all the administrative “donkey work” that is necessary for good governance, planning, and careful day-to-day management. Although an essential cog in the wheels of our overall service provision, regional administration and management costs remain the most difficult to find funding for.

Sustainability

The Association is continually searching for, and developing, opportunities that can take us closer to sustainability, and total independence.

The following projects are owned and run by the QuadPara Association of KZN:-

Minitown Charities on the Durban Beachfront
Capacity building for those with spinal injuries from mining accidents.
Communication Centre for accessible transport (Dial-a-Ride) co-ordination and booking.


 

Community handover in KwaNuswa – Headman request for wheelchair


       
 
Trying out adapted vehicle at Spinal Rehabilitation Centre